Once the fever set in, all that was left was the vigil. Today, we use the term "palliative care" but for other diseases. We argue, when it becomes politically expedient, whether to fund thousands of hours of medical research time to look for a cure for "orphaned" diseases. These sort of discussions won't end as long as there are people who actually value human life over practicality.
The current state of affairs in the tragic case of baby Charlie (that was discussed in https://www.cnet.com/forums/discussions/repeal-and-replace/2/#post-d3676193-a176-4274-aa2c-b2c6a26f7eb3 ) is that Dr Michio Hirano, a professor of neurology at the Columbia University Medical Center in New York is coming over to London for a second opinion about the condition and possible future and treatment of Charlie after examining him.
It seems better indeed to fly a doctor across the ocean than a baby that needs continuous life support because he can't breathe on his own.

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