You know my history,I share your joy!!!!
Many of you will remember that over ten years ago, at age 7 months, my grandson had a massive stroke that left him with only one side of his brain functional. He had to relearn how to do everything he had learned (rolling over, sitting up, eating, swallowing, sucking a bottle, making sounds, etc) and had lost motor function to his right leg and right arm/hand.
He went thru many years of extensive therapy but was able to enter public school and keep up with everybody else except for a few sports activities that he wasn't able to do.
Over the last few years, he began to have a great number of seizures and he got to the point that even massive amounts of medications, including rectal valium treatments were not able to control those seizures and he was barely functioning in school anymore.
He was recommended to the Cleveland Clinic's pediatric neurosurgical team two months ago. After a real barrage of testings, both neurological, physical, and comprehensive, their top man with extensive history as the 'top dog' in his field recommended surgery to cut out the areas of the 'dead' side of his brain that was showing all of the seizure activity. They were able to track that via electrodes over a week long period of time at the Clinic to make sure the seizures weren't coming from the good, functioning half. The seizures were originating from the 'dead' side but traveling to the 'good' side and then bouncing back again over and over again. These tests also gave the surgical team a 'baseline' that they could then compare his recovery to after the surgery itself and know/track Tommy's progress back to what functioned well prior to the surgery and gave them a way to know what he might now need further help with.
Tommy had his surgery two Mondays ago, and two days ago was transferred to their offsite rehab center where he was scheduled to stay for physical therapy on his right leg because of a hamstring shortage, but he has recovered so well that they are releasing him this Friday instead to go home. They have set up outpatient therapy for him at a Medina location since Dusty now lives in that area and are also making arrangements for transportation to and from that location for them. They hope to have him completely back in time for school to start in August so he can again walk without stumbling once in a while.
BUT HE HAS BEEN COMPLETELY SEIZURE FREE SINCE THE SURGERY DATE.
They still have him on his seizure meds, but in three months, they will cut it all back severely and see how he does. A month after that, they will cut back even more on a monthly basis until he is either one of the 75 percentile of patients that never again need to take the seizure meds or he will be in the 25 percentile that can function normally with a bare minimum of meds.
Needless to say, we are absolutely 'over the moon'. Tommy is eleven now, and although it was hard to get Dusty to agree to taking this 'risk', she was finally able to see that this was not about her fear, but rather about Tommy's chance to live a normal life finally without being disabled by seizures to the point of not being able to function in any quality of life environment.