24 total posts
Curious about fibromyalgia
I've seen more and more about this affliction on TV these days but, from what I can gather, it's nothing one can understand without experiencing it and doesn't have any "laboratory" method to assist in diagnosis.
What brings me to this is having once been considered to sit on a jury where a woman was claiming she had fibromyalgia which was caused by a low speed accident that had occurred a year or more ago. The accident was described as a simple fender bump with neither party hurt and damage to the vehicles slight. There were no medical expenses involved at that time. I was part of a jury pool that was being informed of the woman's action seeking a monetary reward from the other driver's insurance company. The selection process included some education about the reason she deserved compensation....part of which was that she felt like she was no longer able to work and support herself any longer. I can remember the lawyer trying to explain to us what fibromyalgia was as, unlike other injuries from accidents, there was nothing visible as evidence...only that the woman said she hurt. I found this to be a difficult situation to sit in judgment of as there was no request for reimbursement of expenses...just that she should be paid for her pain. Each of the prospective jurors were asked a question or two to determine our suitability to sit on this case. I guess the lawyers didn't care for my answers so I didn't get to see it through but always wondered what the outcome was in this case. My response was that I would certainly expect a victim's medical expenses and financial loses to be covered but would be reluctant to give out spending money on top of that. I could certainly see this woman to have possibly been a fraud looking for a nice payday but perhaps her claim was real but had no way to prove it as there was no hard clinical evidence.
I can certainly believe that one can be afflicted by something that's invisible to others but I have to wonder what it's like being on that side legitimately and sensing skepticism all around you. Perhaps this is sensitive for you to address and I don't mean to pry. I've read articles about fibromyalgia on the web but can't get a clear vision of what it really is and how it affects one's relationship with others or another's relationship with that person. No one flocks to a person who's tired or in pain. They just sort of let them alone or stay out of the way. Can't be a good thing either way. In any event, I can't wish pain and discomfort on anyone. Hope ya' gets better.
There is a really good essay by the woman who wrote
Seabiscuit, whose Chronic Fatigue began at age 19 just as she was starting a history degree at University. In the article she points out that 1. the CDC recognizes it as a disease. 2. the NIH recognize it and that she was diagnosed at Johns Hopkins. She has really severe CF and spends most of her time in bed, I assume she has someone who will get her books from the library, probably a University one.
I had fibromyalgia in Britain, and Chronic Fatigue too, but it's gotten much worse though not as bad as Laura Hillenbrand author of Seabiscuit. (Great Book, better than the movie). If you Google Seabiscuit author Chronic Fatigue, you will get to an interview.
Here's where you get to make fun of the Canadian Health System because if you don't go through just the right series of doctors you have a hell of a time getting recognized. I'm right in the middle of that process and am not enjoying it one little bit.
reply to: Chronic Fatigue and Fibromyalgia.
Been dealing with CF and Fibromyalgia my self some years now. Like as once was the case involving the Agent Orange defoliant used in Viet Nam, no one knows what causes Fibromyalgia. But one thing is for certain, it is deffinately real. And many folks just don't understand that the pain is genuine and often debilitating.
Apparently my Mother had it, and I always thought she was faking it as she always [looked] fine. I deffinately know better now, but too bad Mom is no longer around for that understanding.
For years now, I have been getting 12 to 16 injections of Hydochortizon with a steroid every 3-4 months at the VA hospital which until recently was [somewhat] successful as I was able to keep working. But it has gotten to where the injections only help for a day or two. And the steroid has caused some sort of excess fatty growth in the Lumbar spine which is putting pressure on the spinal nerve and occasionally even causes some sort of a perallisys from the waist down. Next time I am at the VA hospital for injections the Doc's going to use something called Sarapin instead of the Hydrochortizone and steroid. This stuff called Sarapin is from the Pitcher plant (venus fly trap) and is supposedly successful in blocking the pain for 80% of paitents using it.
And as in your case, it (apparently the Fibromyalgia) besides causing pain, also results in chronic fatigue and depression. Like as when I was a kid and my Mom was dealing with these problems, most folks think the problems are non-existant. Hopefully while we are still around, some one will come up with a permenant fix for this Fibromyalgia.
Best of luck dealing with it.
I was wondering
When you were talking about mood changes and depression, it reminded me of how many people become depressed when they don't get enough light. In another thread, this couple had moved to Seattle from sunny Georgia, and in their post, talked about how they both were depressed and moody. I told the author about how special lights can often be beneficial.
Whether or not this would help you, I don't know. My gut feeling is that it would help. I think there are many causes for what is called "seasonal mood disorder" though it may have nothing to do with seasons.
There have been some studies that show
that vitamin D is also good for Arthritis conditions I have also tried it and it work "some" as well. Another source of vitamin D is the Sun.
Before taking anything you should check with your physicians.
I'm not into alternative medicines, by the way and those that I've tried have failed. Vitamin E is one of them and it did nothing for me.
You might consider heat and cold treatments for your problem these have been effective for me. Heat works well for temporary relief. This might work well for a muscular form of Arthritis like Fibromyalgia. Talk to a physical therapist about it's use.
2000IU of Vitamin D is safe. I take the gel tabs, one in the morning and one at night.
The darker-skinned you are, the more likely you are to need it...not to mention those who don't get much sun.
Vitamin D is also good for the immune system. If you get the flu or something, you won't get hit as hard. It also helps to prevent cancer and to prevent coronary disease.
I'm sure your intentions, like mine are good but
I am not a physician. My suggestions are based on my personal experience with these vitamins. Individual responses to medication and alternative forms of treatment do vary. There are also the interactive responses of vitamins with other medications to be considered. All I'll saying here is that these worked for me. It is well known that you should consult with a physician about all prescription medications and over the counter ones as well.
I'll also share that if you do share this interest with your physicians they seem to "get busy" and find something better for you to use medically. Of course Doctors vary as well.
I'd certainly never suggest taking mega-doses
of anything. I do know that 2000IU is fine. Growing kids could take more, because of their developing skeletons. If certain medications adversely interact with vitamins, then it seems to me that person could have a serious problem, since the vitamins in question are necessary, whether they are created from sunlight or taken as a gel tab.
Never said you did
neither did I. I think this thread is done.
Yeah, Seasonal Affective Disorder is much improved by Light
Therapy, and it's on my list. I'm wading through two levels of government with a 90 day deadline on both, (Roughly State and Federal) and once I get all my ducks in a row things should improve, but it does mean I have to visit old specialists and get them to write letters within the deadline. If it was my colon I'd just have my wife do it and I'd be done, but I have to see shrinks and internists who both like to waffle rather than say yes or no. Should I get yes's from both levels of government then I'll have a decent place to live and structure from in which to work. I'm hoping for enough to afford a nice one bedroom apt in downtown Toronto which ain't cheap, but can be found, especially co-ops
Cross your fingers for me. My airconditioner died today (it's been viciously hot here for two weeks) so I checked my bank account expecting nothing, and this was the month they gave me the arrears on the Federal money, so I can afford a new airconditioner tomorrow.
Sometimes you get lucky.
Are you sleeping under a ceiling fan
or some such, to keep you asleep at night?
I think a ceiling fan is very helpful
Except during the winter when it's a bit on the cool side. Also, I've noticed some convection going on at other end of the bed. In that case, during cold days, that is, I make sure to tuck it in to ensure my feet are warm.
My brother-in-law has a similar problem
to one of Zik's, and he found it helpful to sleep under a fan while on the breathing apparatus.
NT Yep, thanks Doug
I remember the apnea, but not the Fibromyalgia. (Suspect the chronic fatigue related to the former??? At least, that was my primary symptom. I do know it's also common in depression.)
How are things going with your son?
Moods, anger, depression, of course! When you have a chronic illness that goes with the territory. You'd be weird if you didn't have these symptoms when you're ill all the time!
Of course, I have (diagnosed by biopsy) kidney disease, but doctors said my symptoms were excessive for my "numbers" (lab values), so they said I probably also had chronic fatigue and/or fibromyalgia. I don't know what it is/was, but I had all sorts of autoimmune-type issues. I did feel somewhat better during the summertime, but I really didn't think too much about it.
Since moving to North Carolina I feel pretty awesome even though I stay in air conditioning most of the time. I am still ill, but I am nearly at my pre-illness level of activity and strength. I am able to exercise regularly. Before, half the time I could not even climb out of bed. Even now I do know that if I can't sleep until I naturally wake up I feel a lot worse. Sleep and sunshine/warm weather made a HUGE difference to me. We do use ceiling fans year-round.
Hope you feel better soon, Rob.
"Since moving to North Carolina"
Better doctors there?
Maybe, but not a factor here.
Same drugs and dosages, no changes in regimen at all. Numbers were stable in MI; that has continued here. The only thing that has changed has been how I feel. I have gradually felt better and grown stronger since coming here.
I've even went back to work, albeit medical transcription instead of my previous job as a laboratory technician (non-medical technology-related).
Don't know why but I'm thanking God, counting my blessings, and enjoying every minute...ya never know when this might reverse!
Glad to hear all that.
Maybe the proximity to the ocean is the cause.
What I had in mind was one of our regular posters.
Well Ziks511 are you still with us?
From your health-related posts in the past,
I'm guessing you're somewhat over normal weight as well. If that's the case, start working on that no matter what else you're doing.
Helps sleep apnea for sure, also tiredness and depression. Been there.