6
This content is rated TV-MA, and is for viewers 18 years or older. Are you of age?
Sorry, you are not old enough to view this content.

CNET News Video: ALS patient more independent with tech

About Video Transcript

CNET News Video: ALS patient more independent with tech

3:12 /

Eric Valor has been living with ALS, or Lou Gehrig's disease, for nearly a decade, but he says technology, including a brainwave-sensing headset, has let him maintain a high quality of life. CNET's Kara Tsuboi visits him at home to learn how.

In general, how has technology helped you live with ALS? The short answer is totally. Frankly, with out all this technology to control a computer, and the access it gives me to internet communication, I would have allowed myself, to simply succumb myself to ALS years ago. With the technology available now, I am able to keep myself occupied both professionally, albeit volunteer, as well as socially. I am able to be of service to others and to the cause of finding an effective treatment for my own disease. This keeps my perceived quality of life quite high. I can talk with visitors but I can also schedule their visits. I can manage my own finances and health care. Outside of the physical paralysis that I am still nearly as independent and potent as before diagnosis. What are three of your biggest challenges right now. Like turning off light, controlling temperature, and how do you currently manage those challenges? I have an infrared transceiver which coupled with software on my computer I can control my television and stereo. I use various network tools to control other computers around my house and to help other patients around the country with their own computers. I have attendants who help with lights, temperature, windows, etc. And what was your experience wearing the Emotive Insight Brainware? It is very lightweight and comfortable in its current, second incarnation. The training of the device requires a little patience but it's surprisingly natural in feel. We use our interface devised the Philips POC product is a work of art. I am very impressed with the work done to ensure flow and feedback. If it were to hit the market, how do you see it improving your life? There are critical limitations if one wants to use eyes. Also eyes can fail. Medication interferes with pupils. In ALS, the eyes are relatively spared, but I've lost two friends whose eyes succumbed to the disease, and they could no longer communicate. With this product they could have continued living, that alone demands a market for this. How do you hope technology can improve to help other ALS patients? We have amazing technology and commodity consumer goods. That power must be delivered to the average person in a way they can use and at a price they can afford. This product can achieve both, while also being the most noble form of technology, restoring lost ability and personal independence. We, as people, are the expression of our minds. Our physical bodies are just a vessel for a manifestation of the mind. Therefore, loss of physical ability does not diminish our persons. All it does is limit the ability to manipulate the physical world. I am somewhat of a transhumanist and believe that technology can not only enhance abilities but also restore lost abilities due to trauma or disease. So until medical science catches up technology is the cure for [INAUDIBLE]

New releases

Samsung's premium-looking gas range costs less
2:06 28 March 2015
The $1,699 Samsung Gas Range with True Convection, model number NX58F5700, has a lot to love at a reasonable price.
Play video
PicoBrew's automated beer maker too pricey for most home brewers.
6:28 28 March 2015
We're cloudy on the benefits of the PicoBrew Zymatic, especially for $2,000.
Play video
Meerkat or Periscope? Which is better?
1:54 28 March 2015
With Twitter's Periscope hitting the scene, we had to see how it measures up to Meerkat.
Play video
Samsung Galaxy S6 and S6 Edge: What's the difference?
2:30 28 March 2015
Paralyzed by choice? CNET's Jessica Dolcourt helps you decide if you can really be happy with the base model S6, or if the S6 Edge's...
Play video
2016 Kia Sorento
5:28 28 March 2015
CNET Senior Editor Wayne Cunningham test-drives the new 2016 Kia Sorento Limited Trim model and checks the tech on this comfortable,...
Play video
Mercedes F 015: Car of the future (CNET On Cars, Episode 62)
20:50 28 March 2015
Mercedes asks what shall we do when driving ends, the new safety tech that must be on your new-car shopping list, and the Top 5 affordable...
Play video
Imagine a 10TB Solid State Drive
2:58 28 March 2015
Could a 10TB Solid State Drive be in our near future? Amazon fluffs up their cloud service, Lyft goes social and Tim Cook gives ba...
Play video
It shoots. It scores.
2:53 28 March 2015
Mirrorless Samsung NX1 takes on dSLRs for action photography.
Play video